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1 – 5 of 5Tanja Sappok, Manuel Heinrich and Lisa Underwood
Diagnosing autism spectrum disorder (ASD) is important over the whole life span. Standardized instruments may support the assessment process. The purpose of this paper is to…
Abstract
Purpose
Diagnosing autism spectrum disorder (ASD) is important over the whole life span. Standardized instruments may support the assessment process. The purpose of this paper is to describe English- and German-screening tools for ASD.
Design/methodology/approach
PubMed was used to search for published tools and evidence on their diagnostic validity.
Findings
Searches identified 46 screening tools for ASD. Most are designed for children, while only few measures are available for adults, especially those with additional intellectual disabilities. Many instruments are under-researched, although a small number such as the Modified Checklist for Autism in Toddlers and the SCQ have been widely examined in a variety of populations.
Originality/value
The study identified and described a number of ASD screeners that can support clinicians or researchers when deciding whether to carry out a more comprehensive ASD assessment.
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Sebastian Dern and Tanja Sappok
Adults on the autism spectrum experience difficulties in receiving health care, and health care providers face difficulties in offering health care to adults on the autism…
Abstract
Purpose
Adults on the autism spectrum experience difficulties in receiving health care, and health care providers face difficulties in offering health care to adults on the autism spectrum. The purpose of this paper is first, to assess the various difficulties and second, to provide strategies to overcome them.
Design/methodology/approach
In this qualitative research project, current barriers and facilitators to health care services were sampled from a collaboration of autistic self-advocates and autism professionals in Berlin, Germany. The findings were complemented by a review of practical guidelines and research about the service accessibility of patients on the autism spectrum.
Findings
A comprehensive list of barriers to health care was compiled and structured according to various aspects, such as “making appointments”, “waiting area”, “communication”, and “examination”. Strategies considering the perceptual and communicative peculiarities of autism were found to improve access to health care for autistic adults.
Practical implications
Providing access to the health care system may improve the diagnosis and treatment of mental and somatic illnesses, and thereby, the health status and quality of life for people on the autism spectrum. This recognition of the needs of adults on the autism spectrum may serve as a model for other areas in society, such as education and employment.
Originality/value
Data acquisition in this project is of special value because it resulted from collaboration between an autistic self-advocacy organization and professionals working in the field of intellectual developmental disabilities considering the experiences of autistic adults in the entire range of intellectual functioning.
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Eddie Chaplin, Jane McCarthy, Samuel Tromans and Verity Chester
Many autistic people do not have any access to healthcare services or they experience significant barriers to navigating the healthcare system. The purpose of this paper is to…
Abstract
Purpose
Many autistic people do not have any access to healthcare services or they experience significant barriers to navigating the healthcare system. The purpose of this paper is to represent a significant concern in almost every healthcare setting, including specialized doctors and psychotherapists, outpatient medical care, access to preventive treatments (e.g. information on health and hygiene, vaccinations and early diagnostic screenings) and treatments in hospitals for emergency medical care. Therefore, it is necessary to provide professionals with guidelines and knowledge and to establish concepts for the participation of autistic people also with respect to adequate healthcare.
Design/methodology/approach
As a doctor and autistic person, the author’s training and personal experiences have provided the author with a unique perspective on this topic. It has also given the author an important opportunity to provide recommendations on ways to improve access to appropriate medical services for autistic individuals, improve communication between healthcare providers and autistic individuals and improve overall experiences within the healthcare and medical setting.
Findings
The paper provides information about the shortcoming of the healthcare system for autistic people, problems and barriers to access the healthcare system and for assessment and treatment and offers various suggestions to overcome these restrictions.
Originality/value
This paper is of special value as it is written by a medical doctor who has the diagnosis of ASD herself since she is 27. This combination of professional background on one side and person with ASD on the other side is of special value to permeate the topic.
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